Austin’s Hand to Hold’s Kelli Kelley takes new role consulting Huggies

The Neonatal Intensive Care Unit at St. David'’s Medical Center was where Kelli Kelley’s journey began. Now she’s executive director of Hand to Hold, an organization to help parents of children born prematurely or with other complications. DEBORAH CANNON / AMERICAN-STATESMAN
The Neonatal Intensive Care Unit at St. David’’s Medical Center was where Kelli Kelley’s journey began. Now she’’s executive director of Hand to Hold, an organization to help parents of children born prematurely or with other complications.
DEBORAH CANNON / AMERICAN-STATESMAN

I wrote about Kelli Kelley, the founder of Hand to Hold, in one of my first Giving Ways stories. Austin-based Hand to Hold helps parents of premature and medically fragile babies with educational resources and emotional support.

Now Kelley will serve as a member of the Huggies Nursing Advisory Council. This means that she’ll help educate the diaper company about premature babies skin and development concerns.

 

Kelley said in a press release: “I am honored to serve on the Huggies Nursing Advisory Council. I was unable to hold and touch my one pound, eight ounce micro-preemie son for more than six weeks after he was born. Changing his diaper for the first time was a powerful, emotionally charged event.  I was terrified I might hurt him, but his nurse lovingly and professionally coached me as we had to carefully maneuver multiple pieces of medical equipment and use extreme care with his delicate skin. I look forward my service on the council and working to help ensure medical professionals are well prepared to support and educate NICU parents to help them meet the needs of their medically fragile child.”

Kelley will be the only non-medical professional to serve on the council, which includes registered nurses and nurse practitioners and neonatal occupational therapists.

 

Kids in New Groove gets Hotel Van Zandt support

Kids in a New Groove, a local nonprofit that gives music lessons to kids in foster care, has received a $5,000 grant from the new Hotel Van Zandt.

Westlake charities participate in online fundraiser
Kids In a New Groove music teacher Missy Hance coaches a student during a recital. KIDS IN A NEW GROOVE

“Hotel Van Zandt is centered on supporting the Austin music community with nightly shows in Geraldine’s and curated playlists throughout the hotel, but this helps bring the music story full circle,” said Joe Pagone, general manager of Hotel Van Zandt in a press release. “This partnership with KING really highlights our commitment to becoming an invested part of our community and as a father, I really identify with the impact a cause like this has on future generations of Austinites.”

Kids in a New Groove founder Karyn Scott said: “It’s so exciting for us to partner with Austin’s newest hotel property, Hotel Van Zandt. Through music, we’re able to have one unified vision on how to bring more awareness and support to Austin’s foster care community.”

I wrote about Kids in a New Groove in 2012. I was reminded of all the things I have been able to give my kids — saxophone lessons, guitar lessons, martial arts lessons, a brief turn at soccer — that kids in foster care don’t get. Read that story here.

What are you doing in February? Austin family events happening next month

Theater

 Benjamin Bazan (Tomás) and Claire Stephen as The Library Lady. in Zach Theatre's bilingual Tomás and the Library Lady. Credit: Kirk Tuck
Benjamin Bazan (Tomás) and Claire Stephen as the Library Lady in Zach Theatre’s bilingual Tomás and the Library Lady.
Credit: Kirk Tuck

“Tomás and the Library Lady.” Pat Mora’s story about the son of a young migrant farm worker comes to the Zach Theatre stage in partnership with the University of Texas at Austin Department of Theatre and Dance. For ages 5 and up. 11 a.m. and 2 p.m. Saturdays and 2 p.m. Sundays through Feb. 14. Mora offers a post-show discussion Feb. 13. $12 children, $16 adults. Whisenhunt Stage, 1510 Toomey Road. zachtheatre.org.

“Pippi Longstocking.” 11 a.m. and 1 p.m. Feb. 6, 13, 20, 27; 12:30 p.m. and 2:30 p.m. Feb. 7, 14, 21, 28. $12 adults, $8 children 12 and younger. Scottish Rite Theatre, 207 W. 18th St. scottishritetheater.org.

“James & the Giant Peach.” The Roald Dahl book comes to life in musical form. 6:30 p.m. Feb. 19; 11 a.m. Feb. 20, 27, March 5, 12, 19, 26; April 2, 9. 2 p.m. Feb. 21, 26, March 5, 6, 12, 13, 19, 20, 26, 27, April 2, 3, 9; and 4:30 p.m. April 10. 11 a.m. Feb. 27 is the Autism, sensory-friendly show. $29 adults, $26 children. Zach Theatre’s Kleberg Stage, 202 S. Lamar Blvd. zachtheatre.org.

“Peppa Pig Live!” The beloved pig of children’s literature fame comes to ACL Live. 6 p.m. Feb. 10. $39-$49. ACL Live at the Moody Theater, 310 W. Second St. acl-live.com.

“Pocoyo Live Show.” The TV show comes to life. 4 p.m. Feb. 28. $25-$49. ACL Live at the Moody Theater, 310 W. Second St. acl-live.com.

Events

Kite-Making workshop. 1-3 p.m. Feb. 6. Cantu/Pan American Recreation Center, 2100 E. Third St.

Chinese New Year Festival. Hear and see Chinese music and dance. 2 p.m. Feb. 7, Carver Museum, 1165 Angelina St.

Youth Valentine’s Dance. 5:30 p.m. Feb. 11. Metz Recreation Center, 2406 Canterbury St.

Black History Month Kids Day. Enjoy family crafts and history. Noon-4 p.m. Feb. 13. Carver Museum, 1165 Angelina St.

Valentine’s Day Faerie Tea Party. 11 a.m. and 2:30 p.m. Feb. 14. $16 per child. Zilker Botanical Garden, 2220 Barton Springs Road. Register online at http://austintexas.gov/parks-online-registration

TEDXYouth@Austin Full Circle. An interactive forum for middle- and high-schoolers to share ideas and explore big ideas. Free, but apply at tedxyouthaustin.com. 1 p.m.-5 p.m. Feb. 13. Westlake High School, 4100 Westbank Drive.

Museums

Thinkery Workshops: Cow Eye Dissection for ages 8 and up. 10:30 a.m. Feb. 6, 2:30 p.m. Feb. 7. $39 for one child and adult. Build a Hovercraft for ages 8 and up. 10:30 a.m. Feb. 13 and 2:30 p.m. Feb. 14. $34 for one child and adult. Cooking with Dr. Seuss for ages 4 to 7. 10:30 a.m. Feb. 20 and 2:30 p.m. Feb. 21. $29 one child and adult. Printmaking for ages 4-7. 10:30 a.m. Feb. 27 and 2:30 p.m. Feb. 28. $29 one child and adult. The Thinkery, 1830 Simond Ave. ThinkeryAustin.org.

Girlstart will be offering interactive science at Weatherfest.
Girlstart will be offering interactive science at Weatherfest.

Bullock Museum. Free First Sunday Weather Fest. The Bullock Museum in partnership with Girlstart and Time Warner Cable offers weather-related science experiments and family-friendly activities. Noon-3 p.m. Feb. 7.  Living Histories. The staff at the museum come dresed as historical characters. 10 a.m.-noon. Feb. 4. Science Thursday. Find science experiments from Central Texas Discover Engineering. 10 a.m.-noon Feb. 11. Home School Day. Enjoy STEM activities for homeschoolers. 10 a.m.-2 p.m. Feb. 18. Bullock Texas State History Museum. 1800 Congress Ave. thestoryoftexas.com.

Myopiafest. Learn about Mark Mothersbaugh’s art as Contemporary Austin opens the exhibit “Myopia!” Play games, watch vintage children’s shows and make art to take home. Free. 11 a.m.-3p.m. Feb. 13. Jones Center, 700 Congress Ave. contemporaryaustin.org.

Movies

PBS Kids at the Alamo: “Ready Jet Go!” See this kids astronomy show and enjoy activities with a real life astronomer.  10 a.m. Feb. 13. Alamo Drafthouse Slaughter Lane.

The Minions are back in the summer family film "Minions." Universal Pictures
The Minions are back in the summer family film “Minions.” Universal Pictures

Family movie matinee: “Minions.” 2 p.m. Feb. 6, Windsor Park library branch.

Family movie night: “Shaun the Sheep.” 6:30 p.m. Feb. 9, Twin Oaks library branch; 4 p.m. Feb. 16, Cepeda Branch.

Books

Book People events: Cory Putman Oakes, Jo Whittemore, Mari Mancusi read their books: “Dinosaur Boy Saves Mars,” “Confidentially Yours,” and “Golden Girl.” noon Feb. 13. Kate Wetherhead reads “Jack & Louisa: Act 2” 7 p.m. Feb. 22. Lincoln Peirce reads “Big Nate Blasts Off,” 6 p.m. Feb. 23. Book People, 603 N. Lamar Blvd.bookpeople.com.

This is an undated copy of one of the original illustrations from "The Tale of Peter Rabbit." Frederick Warne & Co.
This is an undated copy of one of the original illustrations from “The Tale of Peter Rabbit.” Frederick Warne & Co.

Barnes & Noble events. Weekly 11 a.m. Saturday story times at all stores: “Silly Wonderful You,” Feb. 6; “Love Monster and the Last Chocolate,” Feb. 13; Peter Rabbit, Feb. 20; Dr. Seuss’s birthday celebration, Feb. 27. Lego event with expert builder. 6:30 p.m. Feb. 9, Sunset Valley. Dumbledore’s Army. This month a love potion will be made. 7 p.m. Feb. 18, Arboretum.  “The Three-Wheeled Wagon,” reading and signing by author Laura McGinnity. 1 p.m. Feb. 20, Round Rock.

At the library: 

Sew Happy. Learn to sew for ages 10 and up. 5 p.m. Feb. 2, Manchaca Road Branch.

Lego Lab. 5 p.m. Feb. 3,  Willie Mae Kirk Branch; 4 p.m. Feb. 5, North Village Branch; 3:30 p.m. Twin Oaks and Windsor Park branches, 3:30 p.m. Feb. 10, Carver Branch; 3:30 p.m. Feb. 11 Yarborough Branch; 4 p.m. Feb. 11 Cepeda Branch; 3:30 p.m. Feb. 12 Hampton and Terrazas branches; 4:30 p.m. Feb. 16, Manchaca Road Branch.

Felt Friends World Tour  — Robot. Sew a felt robot.4:30 p.m. Feb. 4. Twin Oaks Branch.

Book Circle: Lunar New Year Celebration. 3:30 p.m. Feb. 4, Yarborough Branch.

Crafternoon. 3:30 p.m. Feb. 9, Terrazas Branch; 4 p.m. Feb. 11, Twin Oaks Branch; 3:30 p.m. Feb. 22, Manchaca Road Branch; 3:30 p.m. Feb. 23, Terrazas and Howson branches; 4 p.m. Feb. 25, Cepeda Branch.

Maker Mania. 3:30 p.m. Feb. 11. Faulk Central Library.

Book Circle: Legos and Duplos. 3:30 p.m. Feb. 11, Yarborough Branch.

Literature Live Presents: “The Selfesh Giant” puppet theater for ages 4 and up. 3:30 p.m. Feb. 17, North Village Branch.

Art Lab for the Littles. Make art for ages 3 to 6. 11 a.m. Feb. 18. Terrazas Branch.

Family Craft Night. 7 p.m. Feb. 25. Hampton Branch at Oak Hill.

Book Circle: Shrinky Dinks. 3:30 p.m. Feb. 25, Yarborough Branch.

Is there an ADHD epidemic or are we just quick to label kids with symptoms?

Attention-deficit hyperactivity disorder and its cousin attention-deficit disorder seem to be everywhere, right? If you have a kid in early elementary school, you probably are experiencing fellow parents sharing that their kids were diagnosed or you might be looking at your own kid and wonder, is that what this is or is it just Johnny being an active boy or Suzie being a daydreamer?

A January story published in the Journal of American Medical Association Pediatrics cited research that the diagnosis has increased 30 percent in the past 20 years. Is that because we are quicker to identify kids with attention deficits? Or could there be more going on?

All of these kids in a classroom can't have ADHD, right? How can you tell what's normal and what's really ADHD?
All of these kids in a classroom can’t have ADHD, right? How can you tell what’s normal and what’s really ADHD?

The article suggested that perhaps instead of one (or two) disorders, ADD and ADHD should be considered more of a spectrum, like autism. Many kids might fall on that spectrum and benefit from some tailored learning situations, some therapies to help them with organization or accommodations to help improve their abilities to concentrate. The article also points out that the executive function of the brain — that frontal lobe that helps you make good decisions, not be impulsive, have self control, etc. — doesn’t fully develop in girls until age 22 and in boys until age 25.

Are we now asking for kids to do more tasks that are just not physiologically possible for many kids their age? When we ask kids to sit at a desk for many hours a day at school or do more fill-in-the-bubble testing, is it realistic that they could do that without losing focus?

The JAMA Pediatrics story also called for more research in the way the use of smartphones, tablets and computers and the increase in television viewing might be altering the way our kids’ brains work.

Dr. Leonard Sax, who wrote the book  “The Collapse of Parenting: How We Hurt our Kids when We Treat them Like Grown-Ups,” also wonders with a diagnosis like ADHD and other mental illnesses, if what we might be seeing is actually kids who are sleep-deprived. He also believes that the increased use of electronics is rewiring kids’ brains and not for the better. The result might be something that looks like ADHD.

Dr. Sonia Krishna is a child and adolescent psychiatrist at the Seton Mind Institute.
Dr. Sonia Krishna is a child and adolescent psychiatrist at the Seton Mind Institute.

Child and adolescent psychiatrist Sonia Krishna of the Seton Mind Institute agrees that not enough sleep or another psychiatric disorder might cause kids to be labeled with ADHD, when really something else is going on.

A learning disability also can look as if a kid isn’t paying attention, when really, it’s that he just doesn’t understand or cannot process the information.

An ADHD diagnosis might be masking a physical problem such as  the lingering effects of a concussion.

ADHD or ADD also isn’t something that comes on suddenly. If the symptoms do, then Krishna will look at what else is going on: bullying? stress? change in family dynamic?

It might be the go-to diagnosis, but there might be more to it.

Typically, ADHD gets diagnosed by having parents fill out a survey and teachers fill out a survey. Doctors are looking for a child to demonstrate 6 out of 9 specific behaviors and demonstrate those both at home and at another setting like at school before the diagnosis is made. Those can be subjective, although teachers usually can pick out the kids who seem to be stand out for a lack of attention from the rest of the class.

To rule out everything else and to get a clearer picture, Krishna likes to do a full range of neurological tests that take about six hours and cost hundreds of dollars. Often insurance doesn’t cover those tests. Other newer testing such as an ADHD test that tracks eye movement or brain imaging also might not be covered by insurance.

Krishna also looks at family history. ADHD and ADD have a strong genetic link, stronger than hair and eye color, she says. “Usually there is someone in the family,” she says. “What used to happen is they would be pulled out of school and have to go to work. Now we don’t just send kids to work or pull them out to be on the ranch. Now that the policy is to stay in school, we’re seeing a lot more of it.”

It’s still only about 5 percent of kids.

Often, though Krishna says, that by the time patients gets to her from the pediatrician, the diagnosis is pretty clear. They’ve had multiple problems in school and at home.

Sometimes parents are afraid to medicate, though, or afraid of the diagnosis. The good thing about the ADHD medication, Krishna says, is that it becomes obvious if a child has ADHD. The medication is a stimulant, which has the reverse effect on a child with ADHD. That child will be calmer and more focused. The child who doesn’t have ADHD or ADD and gets the medication, will be revved up and will be able to concentrate less than before the medication. The medication also works quickly and is out of a child’s system quickly, too. “That’s why I feel like a trial of medication is not as daunting as it may seem,” Krishna says. “We don’t have to try it for very long to know if it is working.”

Medication is not the only recommendation. Last year a study recommended that kids, especially younger kids, try ADHD therapy first before medications. Some of the therapy is just different ways of making schedules, organizing their stuff, making charts to stay on top of things. Krishna recommends kids with ADHD get assignments written out, be able to use computers instead of hand writing assignments, sit at the front of the classroom, limit the repetition in homework and receive one-on-one tutoring.

“A lot of children don’t need anything if a teacher is mindful and a parent is really involved,” Krishna says.

But for kids who do need medication, you don’t want to ignore it. Kids with ADHD who aren’t treated, might have difficulty making friends, have trouble becoming employed or holding a job as an adult, or self-medicate with drugs or alcohol. ADHD might not be forever. About half of kids diagnosed are able to develop strategies or benefit from the developed frontal lobe to not need medication as adults.

For more information, read our overall guide to ADHD.

 

Parents: You’re not doing your job. Sincerely, expert and author Leonard Sax

Dr. Leonard Sax wrote "Girls on the Edge" and "Boys Adrift."
Dr. Leonard Sax wrote “Girls on the Edge” and “Boys Adrift.”

Family physician, psychologist and author Leondard Sax wants parents to know that they are “raising kids wrong.” The author of “Boys Adrift” and “Girls on the Edge” is back with “The Collapse of Parenting: How We Hurt our Kids when We Treat them Like Grown-Ups.” (Basic Books, $26.99)

“Most American parents are completely confused and going utterly in the wrong direction,” he says. “There’s a collapse of understanding what parenting involves.”

In his book he talks about a scenario in which parents and a 6-year-old child, who had a sore throat, came into his office. When he said, “Next I’m going to take a look at your throat.” The mom turned it into asking for permission by saying, “Do you mind if the doctor looks in your throat for just a second, honey? Afterward we can go and get some ice cream.”

That led to the child refusing to have the doctor look in her throat to do the strep test and the child having to be restrained to get the test accomplished.

“It’s not a question,” Sax says. “It’s a sentence: ‘Open up and say, “Ahh.”‘ “Parents are incapable of speaking to their children in a sentence that ends in a period,” he says. “Every sentence ends in a question mark.”

Some parenting expert told them they should always offer their children choices instead of telling them what to do and parents believed them, he says.

"The Collapse of Parenting," by Leonard Sax. Basic Books, $26.99, available at barnesandnoble.com
“The Collapse of Parenting,” by Leonard Sax.
Basic Books, $26.99, available at barnesandnoble.com

 

The hierarchy of parent over child isn’t there, he continues. Instead of parents exercising their authority because they know what’s best, they are focusing on making kids happy and boosting self-esteem.

“They now see their job as facilitating whatever a kids wants to do,” he says.

Instead, Sax says, their job is to teach kids right from wrong, teach kids the meaning of life and keep their children safe.

“In doing that job, you’re going to do a lot of things a child won’t approve of and not understand,” he says. You have to be the bad guy.

Parents should be focusing on helping kids develop skills such as self-control, humility and conscientiousness, meaning they think of people other than themselves.

Those are things that are the biggest predictors of future success in adulthood, he says, not education or affluence.

One point of irony: this is a generation of parents that is spending more time with children than any previous generation. But instead of spending time with family meals, this generation is spending time shuttling kids from one extracurricular activity to the next or spending time doing the work for them.

“It doesn’t help to spend more time with kids if they are spending it in the wrong ways,” he says.

Sax makes the case through citing numerous research studies that our lack of parental authority is the reason why obesity is on the rise, why more kids are on anti-anxiety and attention deficit disorder medication, why kids are have a culture of disrespect, seem fragile, and why American kids no longer lead the world in education.

Some solutions he’d like you to do right now:

Have family meals at home and make that a top priority. “You have to communicate that our time together as a parent and child is more important than anything else,” he says. One study found that for each additional meal a family had together the less likely kids had internalizing problems such as anxiety or externalizing problems such as skipping school. It also helped kids develop good nutrition habits, lessening the obesity problem.

Take screens out of the bedroom. This includes cellphones, computers, TVs, video games. Kids are chronically sleep deprived, which leads to poor behavior and can even be the reason why kids are getting mental health diagnosis.

Put screens in public places and limit how they are used. This generation is living life in a virtual world. Their online friends can quickly become more important than the friends they see in person. They don’t know how to communicate with someone face to face or have outside interests and hobbies. Video games also rewire the way their brains work. And remember, what they post online never goes away. Install software like My Mobile Watchdog, which will share every photo they take or post with you.

Teach humility. Give lessons that show kids that they are not the most important person in the world. They need to be able to see the world through another lens and be able to handle rejection or failure. It really cannot be “everybody gets a trophy.”

Have an alliance between school and you. If your kid did something, don’t come at teachers or administrator with suspicion and distrust. “Parents swoop in like attorneys demanding evidence,” he says. Instead lessons of honesty and integrity should be enforced. That means your brilliant kid who cheated takes the 0.

Parent what they do. No, your 14-year-old cannot go to a party with college kids or to the beach for spring break. No, they will not be at parties where alcohol is served, and you will not be the one serving it. You have to think of worse-case scenarios like drinking and driving, alcohol poisoning, and sexual assault, and know that these are not decisions that they are ready to make because they are not adults. They need an adult, and that’s you. And even if their peers’ parents are fine with something, you don’t have to be. “Other parents don’t have a clue at what they are doing,” he says. “That’s why what they are doing doesn’t have good outcomes.”

Know that some of these things, especially if they are new for your family, will be difficult and might be hard to enforce at first. You just have to keep at it. Your kids will thank you, not today or maybe not tomorrow, but some day, perhaps.

What do Austin parents and grandparents think about Dr. Sax’s ideas and the state of modern parenting?