University of Texas quarterback Sam Ehlinger gets behind Austin kid’s quest to raise $1 million to save his sister

University of Texas quarterback Sam Ehlinger is trying to help 13-year-old Garland Benson raise $1 million for the Beyond Batten Disease Foundation.

Texas quarterback Sam Ehlinger runs the ball during the Texas Bowl NCAA college football game against Missouri. NICK WAGNER / AMERICAN-STATESMAN 2017

In December, we profiled Garland, whose sister Christiane has the genetic disease, in which the lipopigments, which are made of fat and protein, build up in the brain and the person doesn’t have the ability to clear the cells of them. It causes kids to become clumsy, and then become blind, have seizures and become developmental delayed. In Christiane’s type, the life expectancy is sometime in late teens, early 20s.

Garland Benson is trying to raise $1 million for a treatment for Batten disease, which his sister Christiane has.

Garland’s parents who started the Beyond Batten Foundation are trying to raise $6 million to fund a possible treatment. Garland started his own fundraising campaign Be the Hero to raise $1 million of that. He has raised $370,000 so far.  People can donate through his website page on BeyondBatten.org or by texting “Hero” to 501501.

Watch the video of Ehlinger and Garland encouraging people to donate.

[cmg_anvato video=”4377370″ autoplay=”true”]

 

Author: Nicole Villalpando

Nicole Villalpando writes about families in the Raising Austin blog and the Raising Austin column on Saturdays. She also offers a weekly and monthly family calendar at austin360.com/raisingaustin. She tweets at @raisingaustin.

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