University of Texas quarterback Sam Ehlinger is trying to help 13-year-old Garland Benson raise $1 million for the Beyond Batten Disease Foundation.
In December, we profiled Garland, whose sister Christiane has the genetic disease, in which the lipopigments, which are made of fat and protein, build up in the brain and the person doesn’t have the ability to clear the cells of them. It causes kids to become clumsy, and then become blind, have seizures and become developmental delayed. In Christiane’s type, the life expectancy is sometime in late teens, early 20s.
Garland’s parents who started the Beyond Batten Foundation are trying to raise $6 million to fund a possible treatment. Garland started his own fundraising campaign Be the Hero to raise $1 million of that. He has raised $370,000 so far. People can donate through his website page on BeyondBatten.org or by texting “Hero” to 501501.
Watch the video of Ehlinger and Garland encouraging people to donate.